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Claire Haller's avatar

Since I put Sophie on DNR three years ago, I have thought a lot about death. I consult with the most wonderful palliative care team who are THE most supportive, caring, understanding people I have ever in my lifetime met. My gal is slowly slipping into pain. She is now on gabapentin which is having some success at keeping her comfortable, that and being outside most of her days. But it was the neurosurgeon, back in 2020, a very experienced specialist and even more experienced human being who, when presented with Sophie's symptoms said, "You know what this means, don't you? Yes, you know." But...we are here still and I have wanted her to die, I have feared her dying, I have feared my own dying, dying with her, before her, after her...all the deaths. But the hardest are the emotional ones. The slow killing off of feeling so that you can carry on with it: the nurse called it "your clinical self". Now, I have surrendered to the whole thing. I'm here 'til I'm not, or she's not, or the world is not. I love the trees, the ocean, the sun, the moon and the stars and watch them in awe.

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Beth Coyote's avatar

Dearest Elizabeth-

Whenever I come here, I am sorely tempted to call you. Just to say, yes, yes, yes. I talk about death and to death almost daily. People tell me I'm morbid. I don't think it's morbid, just real. Dear Sophie, Dear Carl, Dear your boys, and dear you. Since my chaplaincy studies ended, I've been writing. Daily. Hourly. There is so much to say. I think of you, caring for your girl, putting your fingers to the keys, telling us your truth, the truth. Thank you. Bless you.

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