I want to thank my two sons, Henry and Oliver, for all they’ve done for me and Sophie the past couple of years. I deeply admire, respect and most of all, love them. Lights of my life. I want to thank, too, my true beloved partner, Carl, who has jumped in the boat and rowed us faithfully and selflessly. I wanted to do that here. Sophie is home from the hospital. She had a different bacteria in her trach and lungs this time, and after five days, we were able to finish the antibiotic at home. I am grateful for that. Frankly (as my father is wont to say), I’ve thought a lot about death of late and writing it down will not make it happen so let’s not go there. Thinking about death, loss and grief, studying it, etc. is thanatology. I have a dear friend who is a professional thanatologist of sorts. She is the one who told me about it, this study. In the photo above, though, I am not thinking about death. I’m around the age my sons are now, 26ish years old. I live in Nashville. I’m recently divorced. I work as a cook at The Slice of Life. I was trained by a man named Paul who was on prison leave. He’d killed his wife, but he was nice to me. I think. Whatever nice meant from a man in 1990. I’ve cut my finger chopping something or other, I am wearing a signet ring on another finger that I received as a gift along with a little white pleather Bible in second grade when I made my First Holy Communion. Slender fingers — don’t touch the wafer, they warned, it’s the body of Jesus. Even if it floated to the top of the mouth, the roof , and hung there, dissolving, I patiently waited. Dear Patient Services, I wrote. The photo. Slender fingers, still. Still with the sad eyes. I will have Sophie with another man in about 5 years but will always miss that first one. The photo spoke to me tonight. I was going to thank my kids here as the good news and then attach the email I sent to Patient Services, a fairly polite complaint letter about our recent experience in the EeeeeeeeeeeR. Instead, it’s this riff on a photo and thanatology, a pit. I am down in it and digging myself out. I have a zinnia garden this year. I made a dish the other night and ate it all: caramelised onions, home-grown tomatoes, gruyere and mozzarella cheese, Progresso bread crumbs, a sort of tartless tart. I bought a very expensive hairbrush on the world wide webs that came in a small gray velvet pouch. Two, actually. I put the small one in my purse. I do these things as I think about death, not in avoidance but more a whatever ,what the hell, I want it? I love it? The Host, the tomatoes, the hairbrush, the zinnias, the lovers, the babies, communion.
Let’s go, second person perspective: Reader, how about you? What do you think about? Where have you been? Who were you?
Since I put Sophie on DNR three years ago, I have thought a lot about death. I consult with the most wonderful palliative care team who are THE most supportive, caring, understanding people I have ever in my lifetime met. My gal is slowly slipping into pain. She is now on gabapentin which is having some success at keeping her comfortable, that and being outside most of her days. But it was the neurosurgeon, back in 2020, a very experienced specialist and even more experienced human being who, when presented with Sophie's symptoms said, "You know what this means, don't you? Yes, you know." But...we are here still and I have wanted her to die, I have feared her dying, I have feared my own dying, dying with her, before her, after her...all the deaths. But the hardest are the emotional ones. The slow killing off of feeling so that you can carry on with it: the nurse called it "your clinical self". Now, I have surrendered to the whole thing. I'm here 'til I'm not, or she's not, or the world is not. I love the trees, the ocean, the sun, the moon and the stars and watch them in awe.
Dearest Elizabeth-
Whenever I come here, I am sorely tempted to call you. Just to say, yes, yes, yes. I talk about death and to death almost daily. People tell me I'm morbid. I don't think it's morbid, just real. Dear Sophie, Dear Carl, Dear your boys, and dear you. Since my chaplaincy studies ended, I've been writing. Daily. Hourly. There is so much to say. I think of you, caring for your girl, putting your fingers to the keys, telling us your truth, the truth. Thank you. Bless you.