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Mary Moon's avatar

You say that Sophie's world is becoming ever smaller and that you don't have the energy to make it larger. Think of this- perhaps Sophie doesn't have the energy to take in a larger world. Also think of the many, many ways you have transcended the difficulties that very few would have even tried to transcend, to make her world a bright and beautiful one. The walks on the beach, the music, the museums...

The gorgeous things you have put in her room to add light and beauty and interest.

Think of the ways Sophie has been able to interact in her own way with her brothers, her caretakers, you and many others. You have made her part of the wider world in a way that very few would have done.

Think of these things and allow yourself grace in knowing you have, and will continue, to love your daughter in all the ways possible. That perhaps an hour sitting in your yard with the shadows and light dancing about her are as important as any trip out into the world could be.

Please don't beat yourself up. Please recognize that you are absolutely the very best mother Sophie could ever have and take peace in that knowledge.

Pixie's avatar

What Mary Moon said. You made me cry because I feel the same way. Do I do enough? Could I do better? I worry about who of us will die first (her please because I can't conceive of her in this world without me, such hubris I know).

Sending hugs and love to you.

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