What's it like to face death every night? you ask. What exactly is it like I ask myself. Tonight. Every night, almost. Every time Sophie has a seizure. Every morning when I go to her room that short walk down the hallway to her room. Will she stop breathing in the interval between my comforting my attendance and my stance at the sink rinsing the syringe clear of the syrup (poison) I've shot into her day night day night day night day night day night day night day night day night. Will she have stopped breathing in the night and lie warm or cold in her bed? This is not morbid. I am not a soldier. The things I carry. What's it like to face death every night? you ask. What exactly is it like? I ask myself. I am not a soldier. I carry nothing but a syringe, a couple of pink pills, a white capsule, a cup of juice diluted with water. No arms but my own. I am not a soldier Sophie is not a warrior and this is not a battle. What's it like to face death every night? you ask (you have never asked). It's a song may the long time sun her gray face turned pink shine upon you my finger at her wrist all love her pulse furious surround you my hand at her brow and the pure light it's okay it's okay within you over and over guide your way on. It's the water rushing through the syringe at the sink afterward my head tilted. I am not a soldier Sophie is not a warrior and this is not a battle. I'm thinking not of crosshairs my perspective is the narrow tunnel of the hall the bed at the end and her small form. Focus.
Focus is a sort of strength that few of us have but which is necessary for all of the noblest endeavors from art to science to facing death daily and keeping it at bay.