I hate to read that you all are going thru this again, not just as a long time reader of your missives, but as a respiratory therapist who routinely cares for patients and families like yours. I like to think I’m one of the good ones.. someone who helps the nurses turn our patients to prevent the much-feared sacral wound, and who slicks damp hair back with a wet wash cloth, and who props arms up with pillows when they’re too close to the side rails, and who notices when suction tubing’s not attached to the canister 🥴 Sometimes the lack of empathy/situational awareness/attention to detail you describe makes me sick to my stomach. I hope you hang in there, and stay strong however you can. If that takes devouring those who dare question you, so be it.
I am sending my support in the form of prayers for healing. The strength of a mother who has fears about her child's care can never be underestimated. Do your best to remember to protect your spirit. You have a Universe of mothers (and fathers) who see you.
Elizabeth you are never whining you are reporting and you do it brilliantly. This post made me scream in my guts. The hospital as animal the cows the ineptitude we all of us cannot be nice when we are advocating for our children ourselves. How else to be heard amidst the noise? There is no other way to navigate the hospital animal. Astonishing writing. I am shook. Love, Rebecca
You are back there again, you and Sophie, oh Elizabeth. You never whine. Not ever. Thank god for your voice, your willingness to use it forcefully when you must, I’m so sorry you have to. Sending love and prayers to you and Sophie.
I'm so sorry Elizabeth, the very thing that saved Sophie (the trach) is also what's causing so many problems. A rock and a hard place. Scylla and Charybdis. There is no easy way. You are Sophie's voice, it's ok to be loud enough for people to hear her.
This is such a hard road you are on. My heartfelt hopes for improvement and speedy recovery.
Sometimes it's too hard to accept the limits of professional medical "care" and its executors. We expect the best and what do we find? Inefficient ordinary humans.
I hate to read that you all are going thru this again, not just as a long time reader of your missives, but as a respiratory therapist who routinely cares for patients and families like yours. I like to think I’m one of the good ones.. someone who helps the nurses turn our patients to prevent the much-feared sacral wound, and who slicks damp hair back with a wet wash cloth, and who props arms up with pillows when they’re too close to the side rails, and who notices when suction tubing’s not attached to the canister 🥴 Sometimes the lack of empathy/situational awareness/attention to detail you describe makes me sick to my stomach. I hope you hang in there, and stay strong however you can. If that takes devouring those who dare question you, so be it.
Thank you for everything you do. Respiratory Therapists saved my daughter many times in the hospital.
We love the RTs at the hospital -- along with the nurses, they are THE BEST.
“Absolutely nothing good has happened when I’ve been nice.” Yes. This.
Why greedy? What a good question.
I am sending my support in the form of prayers for healing. The strength of a mother who has fears about her child's care can never be underestimated. Do your best to remember to protect your spirit. You have a Universe of mothers (and fathers) who see you.
May that praying mantis continue to guide and guard you. 🙏🏽 💙
Elizabeth you are never whining you are reporting and you do it brilliantly. This post made me scream in my guts. The hospital as animal the cows the ineptitude we all of us cannot be nice when we are advocating for our children ourselves. How else to be heard amidst the noise? There is no other way to navigate the hospital animal. Astonishing writing. I am shook. Love, Rebecca
Oh dearest, Elizabeth. Heart wrenching sorrow fo a praying mantis mother, ready to bite off the heads of those who fail to care. And why ever not?
Dammit.
You are back there again, you and Sophie, oh Elizabeth. You never whine. Not ever. Thank god for your voice, your willingness to use it forcefully when you must, I’m so sorry you have to. Sending love and prayers to you and Sophie.
Sending my prayers and support to you from South Carolina.. you are an amazing mama to sweet Sophie!! You both make the world more beautiful
Sending healing love to Sophie and her whole family.
I am so sorry. I can't believe you're here again. Oh, Elizabeth.
I'm so sorry Elizabeth, the very thing that saved Sophie (the trach) is also what's causing so many problems. A rock and a hard place. Scylla and Charybdis. There is no easy way. You are Sophie's voice, it's ok to be loud enough for people to hear her.
Sending you both much love.
This is such a hard road you are on. My heartfelt hopes for improvement and speedy recovery.
Sometimes it's too hard to accept the limits of professional medical "care" and its executors. We expect the best and what do we find? Inefficient ordinary humans.
Stay on top of it, there is no other way.
I so sorry you and Sophie are going through this again. Sending love and pray-ers.
Sending love to you and Sophie. Always.