I felt subdued yesterday, had no desire to celebrate anything, much less the national holiday. I’m not about to write about all the things as my voice is tinny tiny teeny and matters not. I made a berry cobbler, signed up to teach cooking classes to formerly unhoused folks, piddled around in my backyard garden, took care of Sophie and ate some grilled pork chops and salad with Carl and my son Henry. Today I am teaching, gathering together documents to get some financial help with my $8300 co-pay for the eyeball blow-out incident from last February and making an appointment for Sophie to have some labs done, one being a genetic test that might give us
Two years ago we finally got that "more info" on our 26 year old, Haya. Until then it wasn't covered by our health fund. While there is no targeted medicine for this syndrome and the finding didn't affect our or the doctors' treatment choices, it was great to just know: It's a de novo mutation on gene SCN2A. That means it's not hereditary!!! Our other children don't need to worry about passing it to their offspring. It also gave us entry to a new club: The support group of nearly 700 other families in the world with children found to have this mutation. I really wish you the sort of "more info" that will help cope with Sophie's disabilities. Who knows - she may have a mutation for which there's some sort of treatment out there. (And please, direct me to a diaper seedling, you exes!)
That Kuusisto quote. Just, yes. We'd been planning for years to bring my mother-in-law over to live by us so she can be with her only grandchildren as they grow, and be close to her only child. But had to face the reality that the health care she gets in Britain (she was born with a disability, and as she ages it requires more care) is not something we could ever replace here without being extremely wealthy.
Wow that is a huge co pay. I live in Canada and last month was in emergency with what was thought to be a stroke(it wasn't). Catscan, blood tests, then follow up phone appt at stroke clinic. Didn't have a co pay or any charge at all. I do have unstable rental housing and chronic unemployment but except for prescription drug costs which can be large and dental work, no medical cost concerns.That co pay cost is mind blowing.
I would love to be your friend! I don't deserve you though. But your new friends are lucky to have you, as are you, to be still making new friends. And your volunteering sounds like a beautiful idea. For you and your students.
Making new friends when we are our most naked selves is wonderful indeed, as the communion is more likely to be effortless and true. I'm sorry about all the rest of it, though dinner in the back garden with Carl and Henry does sound lovely.
Two years ago we finally got that "more info" on our 26 year old, Haya. Until then it wasn't covered by our health fund. While there is no targeted medicine for this syndrome and the finding didn't affect our or the doctors' treatment choices, it was great to just know: It's a de novo mutation on gene SCN2A. That means it's not hereditary!!! Our other children don't need to worry about passing it to their offspring. It also gave us entry to a new club: The support group of nearly 700 other families in the world with children found to have this mutation. I really wish you the sort of "more info" that will help cope with Sophie's disabilities. Who knows - she may have a mutation for which there's some sort of treatment out there. (And please, direct me to a diaper seedling, you exes!)
That Kuusisto quote. Just, yes. We'd been planning for years to bring my mother-in-law over to live by us so she can be with her only grandchildren as they grow, and be close to her only child. But had to face the reality that the health care she gets in Britain (she was born with a disability, and as she ages it requires more care) is not something we could ever replace here without being extremely wealthy.
Wow that is a huge co pay. I live in Canada and last month was in emergency with what was thought to be a stroke(it wasn't). Catscan, blood tests, then follow up phone appt at stroke clinic. Didn't have a co pay or any charge at all. I do have unstable rental housing and chronic unemployment but except for prescription drug costs which can be large and dental work, no medical cost concerns.That co pay cost is mind blowing.
Two new friends is a beautiful thing. The American systems of justice and healthcare are most definitely not.
I would love to be your friend! I don't deserve you though. But your new friends are lucky to have you, as are you, to be still making new friends. And your volunteering sounds like a beautiful idea. For you and your students.
Making new friends when we are our most naked selves is wonderful indeed, as the communion is more likely to be effortless and true. I'm sorry about all the rest of it, though dinner in the back garden with Carl and Henry does sound lovely.
I agree wholeheartedly with the quote. It boggles my mind that health care is so expensive in the States.
Sending hugs and love woman.